Over 1.8 million nonprofits and charities for donors, volunteers and funders
593 Pageviews Read Stories
Causes: Birth Defects & Genetic Diseases, Health, Philanthropy, Public Foundations, Specifically Named Diseases
Mission: The mission of the moebius syndrome foundation is to provide information and support to individuals with moebius syndrome and their families, promote greater awareness and understanding of moebius syndrome and be an advocate for scientific research to advance the diagnosis and treatment of moebius syndrome and its associated conditions.
Programs: Provide information and support to individuals with moebius syndrome and their families. The newsletter and biannual conference are the primary means of accomplishing this goal.
promote greater awareness and understanding of moebius syndrome. The newsletter and biannual conference are the primary means of accomplishing this goal.
advocate for scientific research to advance the diagnosis and treatment of moebius syndrome and its associated conditions.
provide college scholarships to students with moebius syndrome.
This group provides AMAZING information and support for families affected by this very rare condition. The Moebius syndrome conferences they hold every two years are amazing in their scope, organization, and professionalism. Every family affected by Moebius syndrome should attend--it is a truly priceless experience to meet others who are in the same situation.
Review from Guidestar
